An Open Letter to a Surgeon From His Patient

Here is the introduction by Jesse Gruman, host of the Prepared Patient Forum:

Andrew Robinson

Posted on the Prepared Patient Forum

Andrew Robinson was a successful New York trial attorney when he was diagnosed with “an incurable form of Leukemia” and told he had “less than five years to live.” That was more than 15 years ago. Despite severe complications, including over 50 hospitalizations, Andrew was the founder and CEO of Patient2Patient, a mission based company that developed disease specific WebGuides to help patients learn how to locate and use the medical information, resources and tools available on the Internet.

Andy is a friend, a playwright, a humorist, a blogger and a veteran of many cancer diagnoses and treatments. Andy embodies the ideal participator in Participatory Medicine. He is an informed, active and curious person who has found ways of working with a wide variety of specialist physicians over the years to devise strategies that allow him to remain as healthy and functional as he can.

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TedMed 2012: Day 1

Patricia Salber

Posted 4/10/12 on The Doctor Weighs In

TedMed 2012 has begun.  And how!  The opening event was “Traces-Urban Acrobats.”  Urban Acrobats?  It was mouth-droppingly over-the-top athleticism.  One long sequence consisted of the members of the troup jumping, gliding, and soaring through hoops at varying heights–always landing on their feet and making it look easy.  This was not circus stuff, this was, as our program book described it, “the human body…pushed to its limits.”  Great way to start an long anticipated event.  Take a look:

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Is My Cancer in the Wrong Body Part?

Elaine Waples

Recently, our city hosted the fifth annual national marathon to fight breast cancer.  This is not part of the Komen “race for the cure” but rather a grassroots effort that mushroomed from its inception five years ago into the impressive event it is today. Thousands of people participate as runners,  volunteers, and cheerleaders clad in the signature color.  I must admit, seeing some grown men run twenty six miles wearing pink tu-tus is both awe inspiring and a testament to dedication over self-image.

It’s supporters include corporate sponsors, vendors, and exhibitors, and (no surprise) pharmaceutical companies. Its originators are a local TV celebrity breast cancer survivor and a cancer physician at Mayo clinic. It promises to donate 100% of the money to breast cancer research or care. To date, the event has raised millions of dollars and has met its contribution promise. It’s all very worthy, noble and heartwarming.

Continue reading “Is My Cancer in the Wrong Body Part?”

Fewer Than 10% of People Manage Health via Mobile: a HIMSS Reality Check on Remote Health Monitoring

Jane Sarasohn-Kahn

Posted 2/28/12 on Health Populi

With mobile health consumer market projections for ranging from $7 billion to $43 billion, according to PricewaterhouseCoopers, a casual reader might think that a plethora of health citizens are tracking their health, weight, food intake, exercise, and other observations of daily living by smartphones and tablets.

Continue reading “Fewer Than 10% of People Manage Health via Mobile: a HIMSS Reality Check on Remote Health Monitoring”

How Many Referrals Is Too Many?

Kenneth Lin

Posted 2/1/12 on The American Family Physician Community Blog

Most AFP review articles about conditions that may require co-management of specialists contain a short section or Table titled “Indications for Referral.” For example, the January 1st article on prevention and care of outpatient burns includes a list of criteria from the American Burn Association for considering the transfer of a patient to a burn center. This and other lists generally represent expert consensus on appropriate reasons to refer a patient in a typical primary care setting; obviously, availability and accessibility of specialists has a large influence on a family physician’s practice with regard to management of “referable” conditions. Clinicians’ training and expertise also affect their comfort levels in caring for patients with complex problems and, as previous studies have shown, these factors lead to variations in referral rates.

Despite variations in referral rates among individual physicians, there is a clear trend in the U.S. toward more referrals. An analysis of ambulatory care survey data from 1999 to 2009 recently published in the Archives of Internal Medicine found that the probability that an office visit resulted in a referral nearly doubled during this time period, from 4.8% to 9.3%. It isn’t clear why this is happening, or what percentage of those referrals are appropriate. Medicine may be becoming more complex, or patients may be presenting with more problems that cannot be effectively dealt with in an office visit that is the same length as it was 10 years ago. What is clear is that at a time when a coalition of national primary and specialty care organizations is leading a campaign to reduce overuse of health care resources, the impact of this dramatic increase in referrals cannot be ignored. But in the absence of evidence-based standards for when to refer, how many referrals is too many? Is this even an answerable question? And if it is, what can be done about it?

Presenting Care & Cost Data

Brian Klepper

Over the weekend, Dan Munro – see his recent provocative post on medical management and cost – dropped me most of the chart below – he had cut off everything above the main part of the graphic – which is chock full of interesting comparative information about cost and life expectancy in developed nations around the world. It was first published in the January 2010 National Geographic, but then discussed on their blog as one of many ways to present complex data.

When I first saw it, I couldn’t help but think of Edward Tufte’s classic book The Visual Display of Quantitative Information, which I discovered in my 30’s – I was developing a lot of newsletters on health industry trends at the time – and which Amazon refers to as among the “Best books of the 20th century.” An astonishingly interesting and enlightening book about how to present data.

Note that the clear winners in this chart, in terms of bang for the buck (or yen, as the case may be here), are the Japanese, who spend the least on health care to get the longest lifespan, though having an ethnically homogeneous population and a supportive social structure are two of probably many more variables that help this along.

I apologize for the size of this. It may be helpful to blow this up a bit using Control-+.

The National Nurse Act of 2011

Brian Klepper

On December 15, Rep. Eddie Bernice Johnson (TX-30) introduced HR 3679, The National Nurse Act of 2011.

The legislation, co-led by Rep. Peter King (NY-3), would elevate the existing Chief Nurse Officer of the US Public Health Service to the National Nurse for Public Health, a new full time leadership position that can focus nationally on health promotion and disease prevention priorities.

Teri Mills, MS, RN, CNE

Teri Mills, a Certified Nurse Educator at Portland Community College in Oregon and President of the National Nursing Network Organization (NNNO), introduced the idea of a National Nurse in a 2005 NY Times op/ed. Here is an excerpt from that article.

…Nurses are considered the most honest and ethical professionals, according to a recent Gallup poll. It’s the nurse whom the patient trusts to explain the treatment ordered by a doctor. It is the nurse who teaches new parents how to care for their newborn. It is the nurse who explains to the family how to comfort a dying loved one.

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The Decline of US Scientific Impact

Dov Michaeli

Posted 1/07/12 on The Doctor Weighs In

Incredulous Dov

I have attended more scientific and medical conferences than I care to remember. One thing that never failed to impress me was the large number of foreign-born young scientists attracted to our country and our great universities. Many of those scientists arrived as students from countries that smothered independent thoughts and initiatives, and chose to stay in the country where freedom reigned and the possibilities were unlimited. But then 9/11 happened, and our country was seized with a dark mood of suspicion and outright xenophobia. Young students and scientists could not join our scientific enterprise, to our great detriment. What we lost was the great intellectual cross-fertilization that animated our progress. The rise of xenophobic obsessions, coupled with hostility toward Science by the Bush administration wrought incalculabe long-term harm to American science. Yes, we are still garnering a lot of Nobel Prizes, but don’t let it deceive you -those brilliant scientists are awarded their respective prizes for work done over decades, during the golden age of American science.

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Health Care Social Media – How to Engage Online Without Getting into Trouble (Part II)

David Harlow

Posted 1/05/12 on HealthBlawg

I have been asked to write up some of the core takeaways from the health care social media presentations I have been giving recently, so I am sharing a version of this narrative on HealthBlawg, in two parts.  You may wish to begin with Part I

Professional responsibility and malpractice liability

The American Medical Association has promulgated a social media policy; so has theVeterans Administration.  The two represent very different approaches.  The AMA essentially advocates proceeding with caution, and being cognizant of the damage that one’s own social media activities – and one’s colleagues’ – may do to the profession.  The VA, on the other hand, is out in front on this issue – just as it was with electronic health records – encouraging the use of social media tools to disseminate information and engage patients and caregivers in productive dialogue likely to improve overall wellbeing and health care outcomes.

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6 Big HealthTech Ideas That Will Change Medicine in 2012

Josh Constine

Posted 1/1/12 on TechCrunch

“In the future we might not prescribe drugs all the time, we might prescribe apps.” Singularity University‘s executive director of FutureMed Daniel Kraft M.D. sat down with me to discuss the biggest emerging trends in HealthTech. Here we’ll look at how A.I, big data, 3D printing, social health networks and other new technologies will help you get better medical care. Kraft believes that by analyzing where the field is going, we have the ability to reinvent medicine and build important new business models.

For background, Daniel Kraft studied medicine at Stanford and did his residency at Harvard. He’s the founder of StemCore systems and inventor of the MarrowMiner, a minimally invasive bone marrow stem cell harvesting device. The following is rough transcript of the 6 big ideas Kraft outlined for me at the Practice Fusion conference.

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Consumer Engagement in Health: Greater Cost-Consciousness and Demand for Cost/Quality Information

Jane Sarasohn-Kahn

Posted 12/14/11 on Health Populi

People enrolled in consumer-directed health plans (CDHPs) are more likely than enrollees in traditional health insurance products to be cost-conscious. In particular, CDHP members check prices before they receive health care services, ask for generic drugs versus branded Rx’s, talk to doctors about treatment options and their costs, and use online cost-tracking tools.

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The Vital Role of Guideline Narratives

Kenneth Lin

Posted 12/1/11 on Common Sense Family Doctor 

A few weeks ago, I presented Family Medicine Grand Rounds at Georgetown University School of Medicine on resolving conflicts between screening guidelines. During the question and answer session, Department Chair James Welsh, MD asked how evidence from carefully conducted clinical trials can possibly overcome powerful emotional stories of “saved lives.” I answered that evidence-based medicine’s supporters must fight anecdotes with anecdotes. For every person who believes his or her life was extended by a PSA test or a mammogram, statistics show that many more are temporarily or permanently injured as a result – and their stories matter too. As blogger Kevin Pho, MD wrote about the USPSTF’s recent prostate cancer guideline, “Task Force advocates will need to put a human face on the complications stemming from prostate cancer screening” in order to convince physicians and patients that it’s okay to stop. Indeed, news stories about PSA test-related complications such as this one by Associated Press writer Marilynn Marchione will go a long way in balancing the scales.

An insightful commentary published in JAMA last month took this point one step further by asserting that narratives deployed to support evidence-based guidelines should include not only patients’ stories, but the story of the guideline developers themselves:

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Half of Americans Don’t Realize There’s No-Cost Preventive Care in the Affordable Care Act

Jane Sarasohn-Kahn

Posted 11/30/11 on Health Populi

The U.S. public’s views on health reform — remain fairly negative, although the percent of people feeling favorably toward it increased from 34% to 37% between October and November. Still, that represents a low from the 50% who favored the law back in July 2010. It’s quite possible that American health citizens’ views on health reform are largely reflective of their more general feelings about the direction of the country and what’s going on in Washington right now, versus what’s specifically embodied in the health care law, according to the November 2011 Kaiser Health Tracking Poll from the Kaiser Family Foundation.

Continue reading “Half of Americans Don’t Realize There’s No-Cost Preventive Care in the Affordable Care Act”

An Appreciation: Monique Doyle Spencer

Paul Levy

Posted 11/27/11 on Not Running a Hospital

Brian’s Note: When I read this poignant piece about one woman’s brave perspective on fighting cancer, I showed it to my wife Elaine, who is dealing with late stage primary peritoneal (ovarian) cancer. She commented, “Ah! Someone else who doesn’t want to be categorized as a ‘victim’ or ‘survivor’!” It clearly struck a chord.

Monique Doyle Spencer (seen here in July 2010) died peacefully and surrounded by her family last night after a long stint with metastatic breast cancer.  By any measure, she was an extraordinary person, full of ideas, strongly held views, and with a marvelous sense of humor.  I was privileged to be her friend.

I came to know Monique during one of her stays in our hospital.  She mentioned that she had been writing a book about her experience with cancer, but that no one would publish it because it was funny.  Without a pause, I said that we would publish it as a book from our hospital, and the result was The Courage Muscle, A Chicken’s Guide to Living with Breast Cancer.  Those title words were chosen carefully because her whole being was about living.
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Primary Care Everywhere – How the Shortage of PCPs is Driving Innovation: Especially for Patients’ Participation in Their Own Care

Jane Sarasohn-Kahn

Posted 11/04/11 on Health Populi

The signs of the primary care crisis in America are visible:

  • A growing number of visits to the emergency room for treating commonplace ailments
  • Waiting lists for signing up with and queuing lines to see primary care doctors
  • Fewer med students entering primary care disciplines
  • Maldistribution of primary care practitioners (PCPs) in underserved areas, rural, exurban and urban.

The implementation of the Affordable Care Act will (try to) enroll at least 30 million newly-insured health citizens into the U.S. health system. That’s the objective: whether being insured will actually provide people access to needed primary care is a big question given the current supply of internists, general medicine specialists, family physicians, pediatricians, and OB/GYNs.

Continue reading “Primary Care Everywhere – How the Shortage of PCPs is Driving Innovation: Especially for Patients’ Participation in Their Own Care”