The Tug-of-War Over Health Care Data

Brian Klepper

Last week Anna Wilde Mathews at the Wall Street Journal published a nice piece that detailed the difficulties employers and consumers have getting meaningful health care data from health plans. As the article describes, that lock has been pried loose a little as a result of competition from health care data vendors like Castlight, Thomson Reuters and Healthcare Blue Book.

The health plans, particularly, are loathe to release any data that might reveal their pricing arrangements with providers, and they’ve used the protection of this proprietary information to justify continued data opacity, even though that information could be helpful to their employer clients and members as they try to cost-effectively negotiate the labyrinthine health care system.

We’re in a regulatory environment that has been neutralized, shaped largely by the organizations that would be regulated, and which, if it promotes transparency at all, does so grudgingly and with hurdles. Witness the open letter to Don Berwick, MD, CMS’ Administrator, by Bruce Boissonnault, the savvy, experienced CEO of the Niagara Quality Care Coalition in New York, decrying the tremendous barriers CMS has established that thwart organizations trying to access and analyze Medicare data.

Meanwhile, legacy health care organizations that work to maintain artificially high cost through protectionist maneuvers are really creating market vacuums that, in economically stressed times like the present, are highly susceptible to attack. We see this in the efforts of the health care data firms, and in my own onsite clinic/medical management sector, where we’re driving down cost significantly at the expense of the status quo. In the absence of public policy that is in the common interest, the market may not be as capable as we’d like, but it can sometimes be effective.

In other words, change is inevitable here, and soon.

An Open Letter To Donald Berwick, CMS Administrator

August 4, 2011

Donald Berwick, MD, MPH
Centers for Medicare & Medicaid Services (CMS)
Department of Health and Human Services
Room 445–G, Hubert H. Humphrey Building, 200
Independence Avenue, SW.,
Washington, DC 20201

RE: Availability of Medicare Data for Performance Measurement Proposed Rule Medicare data for performance measurement regulation, as created by Section 3001(a) of the Patient Protection Affordable Care Act (PPACA).

Dear Dr. Berwick:

The Niagara Health Quality Coalition (NHQC) appreciates the opportunity to submit comments regarding the above referenced proposed regulations intended to make Medicare more transparent about its dealings with providers, insurers and other stakeholders. In that context, NHQC feels it is important to be candid.

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